Dustin and Kyli have been through immeasurable suffering, including multiple surgeries, hospitalizations, feeding tubes, fainting spells and much more. They both have Ehlers Danlos Syndrome. Growing up with a complex chronic illness wasn’t easy for either of them, but they eventually both made their way to Jacksonville, Florida, where they met at an EDS/POTS related get-together. They decided early on that they would devote much of their lives to helping others who live with Invisible Diseases. Their passion for helping others comes directly from the fact that they both have struggled so immensely; and unfortunately, from a lack of understanding from people, including medical professionals who are not familiar with their condition.
Their inspiring story of finding love through illness, has been featured on multiple media platforms. Their love for each other reminds them that great things come out of difficult circumstances. The couple is committed to spreading awareness about Ehlers Danlos Syndrome and educating the public on the misconceptions about the disease.
They give a strong voice to those with Ehlers Danlos Syndrome and other chronic illnesses, offering a direct support system for people who are sick and feeling loss. They believe that being chronically ill is exhausting, both physically and emotionally; but when we come together as a group, as a family, we are capable of more than we can imagine. That’s why The Day of Visibility is such a significant day to the couple, and they are so very honored to be a part of it.
Dustin is a stand-up comedian and uses his life situations to make for some seriously funny laughs! What a great time these two must have among their difficulties. Their story has been featured on Cosmopolitan magazine. They have also been featured on Daily Mail, one of the UK’s premier online magazine and news outlets, as well as countless blogs and articles. This is an unstoppable couple who help to heal the world together.
See and support their work here:
Dustin Wood’s standup video at the famous Improv: https://www.youtube.com/watch?v=xLkqGoLDlSs